Resource List

St. Joseph's Health Care London - Dr. Hegele - Canada

CISCRP  - The Center for Information and Study on Clinical Research Participation (CISCRP)

CISCRP - Education Center

CISCRP - Informational Videos

Clincal Trials  - clinicaltrials.gov is a service of the U.S. National Institutes of Health

Compassionate Allowances  - Compassionate Allowances (CAL) are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. 

​​Genes In Life

Hospital in England - Services for patients with Lipodystrophy and/or Insulin Resistance

Toolkits for Living With a Rare Disease

Do you experience sitting discomfort due to low adipose tissue (fat)?

12 Points of Evidence

http://www.aboutgl.com/

http://www.lipodystrophy.co.uk

http://rarediseases.info.nih.gov/gard/6909/lipodystrophy/resources/1

http://www.med.umich.edu/intmed/endocrinology/news/oral-leptin.htm

http://medical-dictionary.thefreedictionary.com/lipodystrophy

http://www.ncbi.nlm.nih.gov/m/pubmed

http://www.myalept.com/

 

Publications:


Since many Lipodystrophy patients struggle with Diabetes, here are related links: 

Prescription Assistance

Cannabidiol lowers incidence of diabetes in non-obese diabetic mice

FDA authorizes first fully interoperable continuous glucose monitoring system

FDA permits marketing of artificial intelligence-based device to detect certain diabetes-related eye problems

 

Published Patient Articles: 

https://www.nytimes.com/2016/07/26/health/skinny-fat.html?_r=0

http://www.dailymail.co.uk/health/article-5437703/The-condition-means-fa.html

http://njjewishnews.com/article/37126/rare-disorder-motivates-rutgers-student-to-help-others#.WoWyAnBlCEc

https://patientworthy.com/2018/03/02/rutgers-student-lipodystrophy-motivated/