Resource List

St. Joseph's Health Care London - Dr. Hegele - Canada

CISCRP  - The Center for Information and Study on Clinical Research Participation (CISCRP)

CISCRP - Education Center

CISCRP - Informational Videos

Clincal Trials  - is a service of the U.S. National Institutes of Health

Compassionate Allowances  - Compassionate Allowances (CAL) are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. 

​​Genes In Life

Hospital in England - Services for patients with Lipodystrophy and/or Insulin Resistance

Toolkits for Living With a Rare Disease

Do you experience sitting discomfort due to low adipose tissue (fat)?

12 Points of Evidence



Since many Lipodystrophy patients struggle with Diabetes, here are related links: 

Prescription Assistance

Cannabidiol lowers incidence of diabetes in non-obese diabetic mice

FDA authorizes first fully interoperable continuous glucose monitoring system

FDA permits marketing of artificial intelligence-based device to detect certain diabetes-related eye problems


Published Patient Articles: