Online & Social Media for Lipodystrophy

Living with a rare, chronic condition has both emotional and physical challenges. Equally important is the role of caregiver in the FPL community. Making connections with others can provide an excellent source of support and information. Following are support resources that also will help patients meet other patients and advocates.

Care Action Network
http://www.rarecaregivers.org/

Facebook
https://www.facebook.com/LipodystrophyUnited/

Twitter
https://twitter.com/LipodystrophyLU

LinkedIn
https://www.linkedin.com/in/lipodystrophyunited

Pinterest
https://www.pinterest.com/LopoNat/ 


National Alliance for Caregiving
www.caregiving.org
https://www.facebook.com/NA4Caregiving/

Neurotalk – Autoimmune Diseases
http://neurotalk.psychcentral.com/forum44.html

Patient – Autoimmune Disorders
http://patient.info/

Patients Like Me
https://www.patientslikeme.com/